[Preview] Living With Autism: A Professional Insight

LIVING WITH AUTISM: A PROFESSIONAL INSIGHT

Unlocking the Spectrum: Navigating Life with Autism

By
Dr. Al Zike

Copyright © 2024

Dr. Al Zike

All rights are reserved. No part of this book may be reproduced, distributed, or transmitted in any form or by any means, including photocopying, recording, or other electronic or mechanical methods, without the prior written permission of the author, except in the case of brief quotations embodied in critical reviews and certain other noncommercial uses permitted by copyright law. For permission requests, write to the author at the address provided in the acknowledgments section of this book.

Printed in the United States of America

First Printing Edition, 2024

ISBN 0-0000000-0-0

PREFACE

In the intricate tapestry of human diversity, autism spectrum disorder (ASD) weaves a unique pattern. It challenges conventional perceptions of neurodevelopment and invites us to explore the spectrum of human experience through a different lens. This book is a dedicated exploration of the multifaceted world of autism—its joys, its challenges, and its profound impact on individuals, families, and society. Through these pages, we embark on a journey of understanding, acceptance, and empowerment, a journey guided by insights from research, personal narratives, and practical strategies.

Table of Contents


INTRODUCTION.. 9


CHAPTER ONE.. 13

UNDERSTANDING AUTISM SPECTRUM DISORDER.. 13

DEFINING AUTISM SPECTRUM DISORDER (ASD): UNDERSTANDING THE SPECTRUM... 15

OVERVIEW OF THE NEURODEVELOPMENTAL DIFFERENCES AND
CHARACTERISTICS. 17

COMMON MYTHS AND MISCONCEPTIONS ABOUT AUTISM... 28

THE IMPORTANCE OF AWARENESS AND EDUCATION.. 39


CHAPTER TWO.. 43

DIAGNOSIS AND EARLY INTERVENTION.. 43

RECOGNIZING SIGNS AND SYMPTOMS OF AUTISM... 45

BENEFITS OF EARLY DIAGNOSIS. 50

NAVIGATING THE DIAGNOSTIC PROCESS. 51

ACCESSING SUPPORT SERVICES. 61

BUILDING AN EARLY INTERVENTION PLAN.. 68

THE ROLE OF HEALTHCARE PROFESSIONALS IN DIAGNOSIS. 74


CHAPTER THREE.. 79

FAMILY DYNAMICS AND SUPPORT. 79

AUTISM AFFECTS EVERYONE IN THE FAMILY. 81

IMPACT OF AUTISM ON FAMILY LIFE.. 82

STRENGTHS AND EMPOWERMENT. 85

SUPPORT SYSTEMS FOR FAMILIES. 88

FINDING COMMUNITY RESOURCES AND GROUPS. 92

CARING FOR THE CAREGIVER.. 97

TIPS FOR YOUR FAMILY. 102

EMBRACING THE JOURNEY. 108


CHAPTER FOUR.. 113

EDUCATION AND DEVELOPMENT. 113

ACCESSING APPROPRIATE EDUCATIONAL RESOURCES AND ACCOMMODATIONS. 115

CREATING AN INCLUSIVE CLASSROOM ENVIRONMENT. 126

CLASSROOM ACCOMMODATIONS FOR STUDENTS WITH AUTISM... 132

COMMUNICATION AND SOCIAL ACCOMMODATIONS. 134

COLLABORATION AND PROFESSIONAL DEVELOPMENT. 137

TRANSITIONING BETWEEN EDUCATIONAL STAGES. 140


CHAPTER FIVE.. 151

SENSORY SENSITIVITIES AND SELF-REGULATION.. 151

UNDERSTANDING SENSORY PROCESSING DISORDER.. 151

HYPERSENSITIVITY. 154

SENSORY AVOIDANCE.. 170

HYPOSENSITIVITY. 171

MANAGING SENSORY PROCESSING DISORDER.. 174

COLLABORATING WITH PROFESSIONALS. 178

RESOURCES TO SUPPORT PARENTS. 181


CHAPTER SIX.. 184

COMMUNICATION AND SOCIAL SKILLS. 184

COMMUNICATION DIFFICULTIES IN AUTISM SPECTRUM DISORDER.. 185

SOCIAL SKILLS AND AUTISM... 188

WHAT SOCIAL SKILLS ARE AFFECTED BY AUTISM?. 189

WHICH SOCIAL SKILLS ARE NECESSARY FOR A CHILD WITH AUTISTIC?. 190

WAYS TO HELP YOUR CHILD DEVELOP SOCIAL SKILLS. 192

HOW TO TEACH SOCIAL SKILLS IN VARIOUS ENVIRONMENTS. 196

STRATEGIES FOR HELPING AUTISTIC KIDS IMPROVE THEIR COMMUNICATION SKILLS. 198

COMMUNICATION METHODS PREFERRED BY AUTISTIC INDIVIDUALS. 201

AVAILABLE RESOURCES TO SUPPORT COMMUNICATION IN AUTISM... 204

PRACTICAL TIPS FOR IMPROVING EXPRESSIVE LANGUAGE.. 206

SUPPORTING COMMUNICATION IN AUTISTIC CHILDREN.. 209


CHAPTER SEVEN.. 211

SPECIAL INTERESTS AND AUTISM-RELATED ABILITIES. 211

WHAT IS AUTISM SPECIAL INTERESTS?. 211

CHARACTERISTICS OF SPECIAL INTERESTS IN AUTISM... 212

THE IMPACT OF SPECIAL INTERESTS. 215

EXPLORING DIFFERENT TYPES OF SPECIAL INTEREST ACTIVITIES. 219

NURTURING SPECIAL INTERESTS. 222

HARNESSING THE POTENTIAL OF SPECIAL INTERESTS. 226

CHANNELING SPECIAL INTERESTS FOR SUCCESS. 229

ADDRESSING CHALLENGES AND CONCERNS. 232

EMBRACING AND CELEBRATING NEURODIVERSITY. 235

WHAT ARE AUTISM-RELATED ABILITIES?. 237

UNDERSTANDING SAVANT SYNDROME IN AUTISM... 238

PROFILES OF AUTISTIC SAVANTS. 240

EXPLORING THE SCIENCE BEHIND SAVANT ABILITIES. 242

IMPACT OF SAVANT ABILITIES ON DAILY LIFE.. 243

SPECIAL INTERESTS IN AUTISM: THE FUTURE.. 245


CHAPTER EIGHT. 248

TRANSITIONING TO ADULTHOOD.. 248

MANY DIFFICULT YET ESSENTIAL CHALLENGES FOR AUTISTICS. 249

HOW TO HELP YOUR CHILD WITH AUTISM TRANSITION TO ADULTHOOD.. 258

10 TIPS ON HOW TO PREPARE FOR AUTISM IN COLLEGE.. 264

HOME SUPPORT SERVICES FOR ADULTS WITH AUTISM... 274

TYPES OF HOME SUPPORT SERVICES. 276


CHAPTER NINE.. 286

EMPLOYMENT AND CAREER DEVELOPMENT. 286

WORKPLACE CHALLENGES FOR INDIVIDUALS WITH AUTISM... 288

AUTISM-FRIENDLY CAREER DEVELOPMENT ADVICE FOR ADULTS. 296

FINDING THE RIGHT CAREER.. 296

IMPORTANCE OF EMPLOYMENT ACCOMMODATIONS. 304

TYPES OF EMPLOYMENT ACCOMMODATIONS. 307

BENEFITS FOR EMPLOYERS. 310

LEGAL CONSIDERATIONS. 312

SUCCESS STORIES. 316


CHAPTER TEN.. 320

SELF-ADVOCACY AND EMPOWERMENT. 320

WHAT IS SELF-ADVOCACY?. 320

TIPS FOR TEACHING AUTISM SELF-ADVOCACY. 326

EMPOWERING AUTISTIC YOUTH TO BE SELF-ADVOCATES. 329

THE SIGNIFICANCE OF PEER GROUPS IN THE AUTISM COMMUNITY. 334

HOW TO PROMOTE AUTONOMY IN AUTISTIC CHILDREN.. 341


CHAPTER ELEVEN.. 346

HEALTH AND WELL-BEING.. 346

ADDRESSING PHYSICAL AND MENTAL HEALTH CONCERNS IN AUTISM... 347

ADDRESSING GASTROINTESTINAL ISSUES. 348

IMPROVING SLEEP QUALITY. 350

MANAGING SEIZURES. 351

ADDRESSING SENSORY PROCESSING PROBLEMS. 353

SUPPORTING MENTAL HEALTH.. 354

HOLISTIC APPROACHES TO HEALTH.. 356

BUILDING A SUPPORTIVE NETWORK.. 357

TIPS FOR HEALTHY LIVING FOR CHILDREN WITH ASD.. 358

AUTISM & DIET: THE BEST & WORST FOODS. 366

BEST FOODS FOR AUTISM... 368

WORST FOODS FOR AUTISM... 371

SPECIAL DIETS FOR AUTISM... 374

CONSIDERATIONS AND CONSULTATION.. 377

TIPS FOR AN HEALTHY AND HEALTHY LIFESTYLE FOR CHILDREN WITH AUTISM... 380

10 AUTISM FITNESS STRATEGIES FOR A HEALTHY LIFESTYLE.. 384

BENEFITS OF AUTISM FITNESS. 391

IMPORTANCE OF REGULAR HEALTH CHECK-UPS. 395


CHAPTER TWELVE.. 399

BUILDING MEANINGFUL RELATIONSHIPS. 399

HOW DOES AUTISM AFFECT RELATIONSHIPS?. 399

CHALLENGES OF AUTISM IN RELATIONSHIPS AND FRIENDSHIPS. 406

MANAGEMENT TIPS FOR RELATIONSHIPS WITH AUTISM... 407

BUILDING HEALTHY RELATIONSHIPS WITH LOVED ONES WITH AUTISM... 410


CONCLUSION.. 420


References. 422

INTRODUCTION

Imagine this: A young boy named Peter, with a mind bursting with creativity and curiosity, sits quietly in the corner of his classroom, drawing some pictures in his notebook. Peter has autism. Growing up, he faced a world that often misunderstood him, doubted his abilities, and saw his unique way of experiencing life as a limitation. Yet, Peter became a renowned architect, his innovative designs shaping skylines and inspiring millions. This story isn’t a fantasy—it’s a reality for countless individuals with autism who defy expectations and achieve greatness. Autism is not a barrier to success but a different lens through which to view the world, which can lead to remarkable accomplishments.


As someone with autism, you know all too well the struggles and misconceptions that come with it. You might have felt the sting of judgment or the frustration of being misunderstood. Perhaps you’ve been told you can’t do certain things or felt overwhelmed by sensory overload or social interactions. These challenges can make everyday life feel like an uphill battle, leaving you wondering if there’s a way to find your way more easily.


This book offers practical strategies, insights, and inspiring stories to help you thrive. It’s not just about coping with autism; it’s about living fully and embracing your unique strengths. Whether you’re seeking ways to manage sensory sensitivities, improve social skills, or find your passion, this book is here to guide you.


The reason you picked up this book might be personal and profound. Perhaps you’ve reached a point where you feel stuck, yearning for a breakthrough. Maybe you’re tired of feeling like an outsider and want to connect with others who understand your experiences. You could be looking for ways to harness your talents and turn them into something extraordinary. Whatever the catalyst, this book speaks directly to your need for change, support, and understanding.


You’ll find stories of individuals with autism who have paved their paths, achieving success in various fields. Take, for instance, Temple Grandin, a world-renowned animal behaviorist whose unique perspective revolutionized the livestock industry. Or consider Satoshi Tajiri, the creator of Pokémon, who transformed his childhood passion for collecting creatures into a global phenomenon. These individuals didn’t let autism define them; instead, they used it as a springboard to achieve their dreams. Their journeys are powerful reminders that you, too, can reach incredible heights.


Reading this book will provide practical tools to find your way in life with autism more effectively. You’ll learn techniques for managing sensory overload, strategies for improving communication and social interactions, and tips for finding and nurturing your passions.


The knowledge shared in this book comes from years of research, personal experiences, and stories from the autism community. It took countless hours of listening, learning, and understanding to compile these insights, ensuring they are relevant and actionable. This book is a culmination of that effort, crafted to be a valuable companion on your journey.


By the time you finish this book, you’ll understand how to harness your strengths and address your challenges. Picture yourself feeling more confident, connected, and capable of pursuing your passions. Think of a life where you can experience social situations with greater ease, your sensory experiences are manageable, and your unique perspective is celebrated. This book aims to help you achieve that better life, guiding you toward a future where autism is not a hindrance but a unique part of your identity.


This is the first step on our shared adventure, and I'll leave you with this quote by Dr. Temple Grandin:


“The world needs all kinds of minds.”


This book is a guide and a companion, offering you the tools and inspiration to live your best life. Let’s explore the possibilities and embrace the extraordinary potential that lies within you.

CHAPTER ONE

UNDERSTANDING AUTISM SPECTRUM DISORDER

Two physicians, Leo Kanner of John Hopkins University and Hans Asperger of Germany, started observing children in the early 1940s who showed certain “emotional or social differences.” Kanner named the disorder autism (derived from the Greek word “autos,” which means “self”) to characterize the tendency to withdraw that was evident in the children he was studying. Asperger’s syndrome, which bears Hans Asperger’s name, entered our vocabulary at about the same period to denote a related disorder.


Schizophrenia and autism were treated similarly for many years, with patients receiving similar medications and electroconvulsive therapy (ECT) as a means of treatment. New insights into autism have surfaced through time and research, enhancing knowledge of the disorder and impacting treatment approaches.


Autism encompasses a wide range of related disorders with a common core of symptoms rather than a single disorder. Every person on the autism spectrum struggles in some way with communication, empathy, social engagement, and adaptable behavior. However, each person has a very different combination of symptoms and degree of disability. Regarding their behaviors and skills, two children with the same diagnosis may appear to be extremely different from one another.


Many terminologies, such as high-functioning autism, atypical autism, autism spectrum disorder, and pervasive developmental disability, may be used by parents of children on the autism spectrum. In addition to their sheer number, these terminologies can be confusing because different medical professionals, therapists, and other parents may use them in different contexts.


But your child’s individual needs are what matter most, regardless of the diagnosis that physicians, educators, and other experts give autism spectrum disorder. No diagnostic label can pinpoint the specific difficulties your child will face. The most beneficial thing you can do is seek out treatment that meets your child’s requirements rather than concentrating on what you could refer to as the issue. You do not require a diagnosis for treating your child’s symptoms.


DEFINING AUTISM SPECTRUM DISORDER (ASD): UNDERSTANDING THE SPECTRUM


Autism, or autism spectrum disorder (ASD), is a complex, lifelong condition that involves behavioral and communication problems. Since it’s a spectrum disorder, various people will experience its effects to differing degrees. It typically manifests by age two or three.


People with autism struggle to communicate. They struggle to understand the emotions and thoughts of others. As a result, they find it difficult to communicate verbally and through touch, gestures, and facial expressions.


Learning difficulties can arise for those with autism. Their abilities may not develop equally. For instance, individuals might struggle with speech yet excel in arithmetic, music, art, or memory-related subjects. As a result, they may perform particularly well on tests of analysis or problem-solving.


Autism is being diagnosed in more kids than it has ever been in history. However, the most recent figures might be higher due to modifications in the diagnosis process rather than because more kids have the condition.


“High-functioning” or “low-functioning” autism


Every individual with autism will experience symptoms differently. Some people struggle more than others with communication, learning, or social skills. They cannot live alone in certain situations and may require assistance with daily duties. This is commonly referred to as “low-functioning autism.”


There may be others with autism who exhibit less evident symptoms. They often perform well in school and have fewer communication issues. This is commonly referred to as “high-functioning autism.”


However, it can be insulting to refer to someone as “high-functioning” or “low-functioning.” Best to stay away from such words. Alternatively, you may use language like “more significant” or “less significant” to discuss how someone with autism is affected.


OVERVIEW OF THE NEURODEVELOPMENTAL DIFFERENCES AND CHARACTERISTICS


Neurodevelopmental disorders (NDs) are a collection of many illnesses that harm brain development and function. These may result in issues with speech, behavior, memory, learning, self-control, or other areas of health.


Most neurodevelopmental disorders have symptoms that often appear in early childhood and can last into young adulthood, or they might go unrecognized or misdiagnosed for a long time. A child with a neurodevelopmental problem may, in rare circumstances, outgrow their symptoms; however, this is not usually the case, and the condition often persists until adulthood.


The coexistence of many neurodevelopmental disorders is prevalent. The following is a list of the various kinds of neurodevelopmental disorders.


1. Attention-deficit/hyperactivity disorder (ADHD)


ADHD is a medical disorder characterized by an ongoing pattern of hyperactive-impulsive behavior and inattention. It is among the most prevalent neurodevelopmental disorders that kids face.

ADHD symptoms include being unable to concentrate on a single task, fidgeting all the time, having trouble taking turns, talking too much, being restless, interrupting people, and behaving without thinking.


It can be challenging to differentiate between autism and ADHD because their symptoms can occasionally overlap, especially in younger children. While communication issues are a feature of both disorders, children with ADHD may present these difficulties differently. For example, a person with autism might not approach others socially, yet a person with ADHD might talk nonstop and interrupt others.


Some of the behavioral symptoms of ADHD include anger outbursts, resistance, meltdowns, aggressive behavior, tantrums, agitation, and inattention.


2. Autism spectrum disorder (ASD)


ASD is a developmental and neurological disorder marked by limited interests, repetitive behaviors, and ongoing difficulties with social relationships.


ASD symptoms include a dislike of loud noises, difficulty expressing thoughts and emotions, difficulty adjusting to changes in routine, difficulties keeping eye contact, and obsession with a single topic of conversation.


Since ASD is a “spectrum” condition, every person with it experiences symptoms and ability levels differently. For example, while some children with ASD can express themselves verbally, others can express themselves nonverbally.


Autism spectrum condition can cause low muscle tone, difficulty with fine motor skills, irregular walking patterns, poor balance and coordination, sleep disorders, digestive problems, and low muscle tone.


Some of the behavioral impacts of autism spectrum disorder (ASD) include social skills problems, aggressiveness, repetitious body language, difficulty expressing one’s own emotions, difficulty understanding others’ feelings, and inattentiveness to one’s environment.


3. Cerebral palsy


Cerebral palsy (CP) is a developmental impairment that affects muscle tone, balance, movement, posture, and coordination. It happens when there is insufficient communication between the brain and the muscles to provide instructions on moving smoothly or in unison.


Weak arms and legs, trouble speaking, inability to support one’s head when sitting, excessive drooling, muscle spasms, unusual fidgety motions, and stiff or floppy muscles/limbs are some symptoms of cerebral palsy (CP).


Cerebral palsy usually arises from a single brain injury event, whereas other neurodevelopmental disorders usually result from a mix of environmental and genetic variables.


Some physical signs of cerebral palsy include muscular weakness, shakiness, uneven walking, uncontrollable or unpredictable movements, loss of muscular coordination, abnormal posture, and increased reflexes.


Conversely, a person with cerebral palsy may exhibit hyperactivity, reliance, disobedience, anxiety, anger management, and difficulties interacting with peers as behavioral impacts.


4. Communication disorders


Communication disorders are neurodevelopmental disorders defined by deficits in the sending, detecting, processing, or understanding of language, speech, or information.


Signs of communication disorders include the inability to utter sounds correctly, repeated sounds, a slower speech tempo, a limited vocabulary for one’s age, difficulties focusing, difficulty mimicking speech sounds, and repeating words out of order.


Unlike other neurodevelopmental disorders, communication disorders have ongoing challenges with speech and language.

The physical impacts of communication disorders include reduced immunological function, a drop in self-rated health, an increase in disease incidence, and an increase in mortality.


Meanwhile, the behavioral impacts linked with communication disorders include social disengagement, decreased social engagement, emotional dysregulation, hostility, and difficulties in school.


5. Conduct disorders


Conduct disorders are examples of neurodevelopmental disorders that are a subset of behavioral and emotional illnesses that include a recurrent and persistent pattern of disregard for other people and social standards.


Conduct disorders manifest as physical fights, bullying, starting fires, lying, cheating, and regularly disobeying parentally-imposed regulations.


Different from other neurodevelopmental disorders, conduct disorders are characterized by activities that often infringe upon the rights of others, defy social standards, and challenge authority figures.


Conduct disorders have behavioral effects such as lying or manipulation, starting physical fights, aggression toward people and animals, self-harming behaviors, and suicidal thoughts. Physical effects include injuries to oneself or others, STIs, and even death.


6. Intellectual disabilities


Intellectual disabilities refer to problems with adaptive behavior, cognitive ability, and functioning. These include issues with social skills, personal hygiene, and communication.


Intellectual disability symptoms include delayed development - a child may reach developmental milestones such as crawling, sitting up, talking, or walking later than other children of the same age; other symptoms include trouble remembering things, difficulty understanding social rules, inability to see consequences of actions, and difficulty solving problems.


Physical effects of intellectual disability include a marked delay in attaining developmental milestones, the need for daily support to function, and the inability to dress or go potty on one’s own.


Conversely, the behavioral consequences of ID include aggressiveness, low frustration tolerance, explosive outbursts, trouble forming interpersonal relationships, and even suicidal thoughts and actions.


7. Learning disorders


Learning disorders come next on the list of neurodevelopmental disorders. Learning disorders are a collection of neurologically based conditions that impact one or more learning domains.


Compared to other children of the same age, delayed talking, trouble following instructions, short attention span, difficulty focusing, poor memory, clumsiness, and problems with reading, writing, or math are some indicators of learning disorders.


Learning disorders, in contrast to intellectual disabilities, solely impact a child’s information processing in particular academic areas and do not affect a child’s general functioning or intellectual capacity.


Learning disorders can cause physical symptoms such as poor hand-eye coordination, clumsiness, trouble running or jumping, difficulty buttoning or tying shoelaces, and problems with movement and coordination.


Learning disorders can also have behavioral impacts, such as mood swings, poor organizational abilities, tantrums, low self-esteem, resistance, and impulsivity.


8. Neurodevelopmental motor disorders


“neurodevelopmental motor disorders” describe neural system abnormalities resulting in aberrant, heightened, or uncontrollable body motions. These disorders may also result in the absence of movement or excessive, repetitive movement.


Some signs of motor disorders include tremors, gait issues, delayed movement, trouble speaking and swallowing, balance issues, cramps, jerks, spasms, tight or inflexible muscles, and immobility.


Tics, or uncontrollable movements and speech, are a defining feature of neurodevelopmental motor disorders, whereas cerebral palsy is specifically known as a condition caused by harm to the developing brain. There could be both physical and vocal tics.


Movement disorders can cause a person to have trouble walking, muscle weakness, coordination issues, spasms in the muscles, instability, clumsiness, and frequent falls.


A few behavioral symptoms that these disorders may cause include a lack of interest or initiative, anxiety, personality changes, agitation, delusions, hallucinations, and impulsivity.


9. Schizophrenia


Schizophrenia is a mental illness that distorts an individual’s perception of reality. It affects a person’s capacity for reasoned thought, effective emotional expression, and decision-making.


Some of the signs of schizophrenia include hallucinations, disordered speech, delusions and thought patterns, improper motor activity, difficulty sleeping, an inability to feel pleasure, and a lack of motivation.


Some of the behavioral symptoms of schizophrenia include poor personal cleanliness, difficulty concentrating, speech problems, memory loss, social isolation, lack of emotional expressiveness, and aggressive actions.


10. Tourette syndrome (TS)


TS is a neurological disorder marked by repetitive, jerky, and involuntary movements and vocalizations known as tics. For example, a person suffering from Tourette’s syndrome may persistently blink, jerk their head, bite their lip, or cry out a sound or phrase, which may occasionally be considered offensive.


Tourette syndrome is characterized by facial grimacing, shoulder jerking, sniffing, grunting, throat clearing, and repeating words or phrases said by others.


The physical effects of TS include involuntary motions of the head and neck, as well as common adverse effects from Tourette drugs like fatigue, tense muscles, and weight gain.


Turn-taking issues, emotional dysregulation, an unwillingness to compromise, a lack of inhibition, explosive wrath, inappropriate remarks, excessive silliness, and oppositional defiance are some of the behavioral symptoms of Tourette syndrome.


That concludes the list of some of the most common neurodevelopmental disorders. Neurodevelopmental differences are integral to human diversity, each contributing unique perspectives and talents to society. By understanding and appreciating the characteristics of these differences, we can create inclusive environments that celebrate individual strengths and promote the full participation and inclusion of all individuals, regardless of their neurodevelopmental profile.


Understanding these differences is crucial as it fosters empathy and compassion, promoting societal acceptance and support.


COMMON MYTHS AND MISCONCEPTIONS ABOUT AUTISM


People on the autistic spectrum may find it challenging to get the support they require and for their condition to be acknowledged due to a lack of understanding.


Misconceptions might cause some people with autism to feel alone and isolated. Abuse and bullying may also result in severe situations.


A lot of people have the wrong ideas about autism spectrum disorders.


From the misconception that all people with autism are like “Rain Man” to the concept of “refrigerator mothers,” this condition has historically been greatly misunderstood.


And a lot of myths and false beliefs continue today.


Below are some common misconceptions as we see them, along with an explanation of the facts!


Myth: Everyone with autism is savant or non-verbal.


ASD is a neurodevelopmental disorder that happens on a spectrum. The DSM lists the following characteristics of ASD:


  • Impaired social interaction and communication in various circumstances
  • Restricted and recurring interests, activities, or behavioral habits.


However, there are significant differences in the severity of these impairments, their impact on day-to-day functioning, and their effects on academic performance. For example, language impairments can include everything from poor comprehension to nonexistent speaking to poor social communication. While some people with ASD can live independently, others need a lot of assistance. The diagnosis of Asperger’s disorder, pervasive developmental disorder, and childhood disintegrative disorder are all present in the broad category of functioning included by the diagnosis of ASD. Although the extremes of the autistic spectrum are often portrayed in the media, people with ASD have a range of needs and strengths. Educators must provide kids with tailored solutions based on their needs rather than just the diagnosis.


Myth: Individuals with autism are only suitable for jobs requiring repetitive tasks.


Since autism is a spectrum disorder, not every individual with ASD will be suited for a certain kind of work. Even though many people with ASD may find enjoyment in repetitive jobs, a disability designation alone should not be used to determine if a job is a good fit. Employers would benefit from the wide range of strengths, talents, and skills that people with ASD possess. Unfortunately, estimates of the unemployment rate for adults with ASD range from 50% to 75%, and many of those who do have work report being underemployed. One explanation for this is that people with ASD often lack the social skills required to succeed in the workplace and at job interviews. Specialisterne is one organization that supports people with ASD in finding and keeping jobs. They pair up workers with ASD with a coach who helps them navigate the social settings of the workplace. Ultimately, it’s critical to consider the applicant’s preferences, interests, needs, and strengths when considering employment.


The ramifications of this for educators who work with students who have ASD are significant. Children should be allowed to consider various professional opportunities throughout their time in school. Teachers shouldn’t restrict a student’s options just because they have ASD. It is important to consider the abilities and interests of the students while developing transition strategies. Additionally, teachers shouldn’t discount the possibility of college for their ASD students. Teachers must support students in acquiring the social skills necessary for success in their desired post-secondary program and/or career route.


Myth: Relationships are impossible for individuals with autism.


People with ASD may have difficulties interacting with others, but this does not prevent them from forming relationships. It is possible and does happen for people with ASD to have happy relationships with their spouses, kids, relatives, and friends. Recent research has shown that most people with ASD desire to build relationships with others, contrary to the widely held belief that they prefer social isolation. The firsthand accounts of people on the autism spectrum reinforce this conclusion. Even with this desire, navigating social connections and interpreting social cues remains challenging for those with ASD. Those with ASD may find it helpful to establish and maintain relationships with others who are on and off the spectrum through social media and other online networking platforms. It’s also critical for those without ASD to understand the viewpoint of their friends who have autism. For example, people with ASD may be direct and may not sugarcoat their opinions in the way that is customary in everyday social settings, which may upset other people. Real and durable social ties between people with and without ASD are achievable as long as the non-ASD population is sensitive to these differences.


Instructors should design classrooms so students with ASD can interact socially with their peers. Regular opportunities for students with ASD to engage in inclusive contexts with their peers who have and do not have ASD are beneficial. Teachers can also specifically instruct other students on making and keeping friends with their peers on the spectrum.


Myth: Autism is caused by vaccines.


Even though there is no one recognized cause of ASD, a connection between vaccines and any research does not support ASD. It was formerly believed that methylmercury, a component of several vaccines, was the cause of ASD. However, rather than declining when thimerosal was taken out of vaccines, the prevalence of ASD has risen. The papers that show there is no connection between immunizations and autism spectrum disorders have been collated by the American Academy of Pediatrics. Vaccines do not appear to cause autism spectrum disorder (ASD); nonetheless, some genetic and environmental factors are connected to an increased risk of ASD because of their impact on brain development. Currently, 61 genetic variants have been linked to an increased risk of ASD; additional factors that may be involved include chromosomal abnormalities and repeated or deleted DNA segments. Advanced paternal age (over 34), poor maternal physical and mental health, prenatal drug usage, maternal exposure to toxins, preterm birth, birth difficulties, low birth weight, jaundice, and postpartum infections are among the environmental risk factors linked to ASD. Since measles, rubella, and mumps are among the infections linked to a higher risk of ASD, getting the MMR vaccine in advance helps reduce the chance of contracting these infections and developing ASD. Even though they cannot counsel parents on medical matters, instructors should be knowledgeable about this topic.


Myth: Girls don’t usually have autism.


Although it's less common, autism is still diagnosed in girls. Boys have four times the likelihood of being diagnosed with ASD than girls do. Boys are still more likely to be born with ASD than girls, even though girls are more likely to have an incorrect diagnosis when they do.


Moreover, ASD can run in families. A genetic component exists. If you have a sibling with ASD or even if you have second-generation relatives like an aunt or cousin, you have a higher chance of receiving an ASD diagnosis. Although the risk is very low, children with fathers who are older than average are more likely to receive an ASD diagnosis.


Myth: The experiences of people with ASD are all the same.


Autistic individuals show a wide range of symptoms as well as experiences. The skill sets, behaviors, and difficulties that individuals with ASD face might differ greatly from one another. Since autism spectrum disorders (ASD) encompass a wide range of problems, each person’s experience with the condition is unique.


Uncertain brain abnormalities caused by ASD can vary greatly from person to person, as can its symptoms. Because the symptoms they encounter can differ greatly, no two people have the same life experience. It truly means that you only know one individual with ASD if you know just one person with the disorder.


In the DSM-5, autism was renamed as autism spectrum disorder (ASD) in 2013. It was decided to incorporate individuals with different levels of disabilities into the new name.


Myth: The majority of people with ASD have profound intellectual impairments.


No, the majority of Americans with ASD do not have profound intellectual problems and can contribute rather well to society. However, this isn’t the case everywhere. The majority of people with ASD have intellectual difficulties, especially in developing nations like India, where there are no specialist support networks, and the disorder is rarely diagnosed until there are severe symptoms.


Furthermore, it’s a fallacy that most people with autism possess extraordinary abilities like photographic memory or prodigal musical capabilities. Though extremely uncommon, it does occur.


Myth: More children are developing autism because of something in their surroundings.


Diagnoses for autism are made more often than in the past. A decade ago, 1 in 88 children in the United States had ASD; now, 1 in 44 have it, according to the CDC. That growth, however, is probably not environmental.


The majority of the research suggests a few factors. Firstly, the way we describe autism in children has changed, and the term is now used to describe a wide range of problems, such as Asperger’s syndrome, autistic disorder, and pervasive developmental disorder. The chance of a diagnosis has also grown with increased knowledge of the disorder. The majority of the growth is probably the result of these two variables.


Myth: You can only be diagnosed as a child.


No. As our knowledge of autism grows, more and more adults are receiving a diagnosis for the disorder. This is because, in contrast to conditions like excessive blood pressure, ASD cannot be diagnosed using a biological marker. Since clinicians are unaware that ASD is the root cause of symptoms, many patients are misdiagnosed as having childhood disorders like ADHD and anxiety.


Additionally, studies have demonstrated that while some individuals may remain in the ASD spectrum, as they get older, their symptoms intensify due to external factors.


Here are a few more warning signs of pseudoscience. Watch out for anyone promoting:


  • They say that any treatment can treat autism. Autism presently has no known treatment. Some people think there’s no point in hunting for one, and many find the idea quite offensive.


  • It defies logic that the world’s foremost authorities on autism and governments are nonetheless ignorant of the existence of a treatment. Any significant advancement in treating autism will make headlines worldwide, and everyone will know it!


  • Treatments derived from unduly basic theories. Complex in nature, autism alters the wiring of the brain and is closely correlated with genetics. It’s improbable that a single cause will ever be identified.


  • There is insufficient evidence to support the claims that individuals with autism have a different and aberrant biochemistry that calls for the use of pricey supplements or that autism can be treated solely with elimination diets.


  • Claims that certain treatments work for entirely unrelated and different conditions. What is the connection between autism and cancer? Very little. However, some therapies are marketed as cures for both ailments.


  • Treatments that make their efficacy solely dependent on personal stories or testimonials. The effectiveness of a treatment can only be ascertained by well-planned research.


  • Any medication that promises to be side effect-free. Nothing comes without consequences, and at worst, some treatments might be harmful, while at best, they just waste time.


  • Conspiracy theories. Anyone advertising a treatment that “doctors don’t want to tell you about” should be avoided.


Like everyone else, doctors desire the greatest possible outcomes for people with autism. In actuality, a large number of doctors are also parents. They have no rational justification to withhold from you any viable therapy.


It is highly advised to consult a reliable healthcare provider before beginning any treatment that raises one or more warning signs.

Keep in mind this wise saying:


“It’s probably true if it sounds too good to be true.”


Although not many of these treatments will truly hurt your child, they can definitely hurt your wallet. Furthermore, chasing pseudoscience can divert your attention from evidence-based therapies that have been shown to benefit your child.


THE IMPORTANCE OF AWARENESS AND EDUCATION


Awareness of autism is crucial for several reasons. First, it can contribute to a better understanding of ASD. People are less likely to assume negative things about or have preconceptions about those who have ASD when they are aware of what it is. A more welcoming and inclusive society may result from this.


Second, early detection and intervention can be facilitated by raising autism awareness. To help children with ASD realize their full potential, early intervention is crucial. Parents and other caregivers can seek assistance earlier if they are aware of the symptoms of ASD.


Third, raising awareness of autism can help remove barriers. Individuals with ASD often encounter difficulties in their work, school, and other facets of life. Raising autism awareness can contribute to making the world more inclusive and approachable for those who have ASD.


Autism awareness can be raised in a variety of ways. You can volunteer for an autism organization, post information on social media, or talk with your friends and family about ASD. A tiny bit goes a long way toward changing things.


The following are some particular advantages of autism awareness:


  • Early identification and intervention. Parents and other caregivers can seek assistance earlier if they are aware of the symptoms of ASD. To help children with ASD realize their full potential, early intervention is crucial.


  • A greater degree of acceptance and understanding. People are less likely to assume negative things about or have preconceptions about those who have ASD when they are aware of what it is. A more welcoming and inclusive society may result from this.


  • The removal of obstacles. Individuals with ASD often encounter difficulties in their work, school, and other facets of life. Raising autism awareness can contribute to making the world more inclusive and approachable for those who have ASD.


  • Empowerment of families and individuals with ASD. Raising awareness of autism can empower people with ASD and their families. They may feel less isolated and more supported as a result.


How to Increase Awareness of Autism


Autism awareness can be raised in a variety of ways. Here are some suggestions:


  • Discuss ASD with your family and friends. Tell them what you know about ASD and its effects on individuals.


  • Share content via social media. Make use of your social media accounts to raise awareness about autism.


  • Volunteer your time to a charity that supports autism. Numerous organizations about autism need volunteers. You can help with arranging events, raising money, and other tasks.


  • Contribute to a group that supports people with autism. Your gift can assist the work of organizations that promote autism.


  • Take part in an autism awareness program. Numerous activities are held throughout the year to raise awareness of autism. One excellent approach to demonstrate your support and learn more about ASD is to attend an event.

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